Have your say and help to shape future research into cystic fibrosis

Patients with cystic fibrosis, their families and health professionals are being offered the opportunity to shape future research into the condition through the launch of a new online survey.

The new survey, which has been devised by the James Lind Alliance Cystic Fibrosis Priority Setting Partnership and is being led by a team at The University of Nottingham, asks people for their views on the most urgent questions that need to be answered about cystic fibrosis (CF) and its treatment.

The questions will then be collated and the cystic fibrosis community will be asked to rank them in order of importance as part of a follow up exercise. The top 10 priority list for CF research will then be published in early 2017.

Professor Alan Smyth, Professor of Child Health in The University of Nottingham’s School of Medicine and a respiratory paediatrician at Nottingham University Hospitals NHS Trust is one of the partners involved in the new initiative.

He said: “I am an active researcher in cystic fibrosis and I am excited and energised at the prospect of working so closely with the community to decide the top 10 questions we should be addressing with our research.”

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