Nicola Turner

Contact

• workRoom B302 School of Health Sciences
  Queen's Medical Centre
  Nottingham
  NG7 2UH
  UK
• work0115 8230537
• Nicola.Turner@nottingham.ac.uk

Biography

I have a professional background in working collaboratively with individuals and groups in health, local authority and wider community settings. I have held posts in public health, community development and children's services. My Masters in Public Health and PhD in Health Sciences were completed at the University of Nottingham.

My current research interests focus on social aspects of death and dying; exploring individual experiences of the end of life in family, community and social contexts. I have a particular interest in the dynamics of care in the home for people who are at the end of life, and in experiences of dying that fall outside the cultural script of a good death.

Research Summary

I am currently employed as a Senior Research Fellow in the Nottingham Centre for the Advancement of Research in supportive, palliative and End of life care (NCARE).

Study: Understanding living with tracheostomy ventilation for Motor Neurone Disease (MND) and the implications for quality of life (PI Dr Eleanor Wilson) Funded by MNDA explore patient, family and healthcare professional experiences of using tracheostomy ventilation (TV) to support breathing for people with MND

Recent Publications

• MITCHELL, S., TURNER, N., FRYER, K., BENG, J., OGDEN, M., WATSON, M., GARDINER, C., BAYLEY, J., SLEEMAN, K. and EVANS, C., 2024. A framework for more equitable, diverse, and inclusive Patient and Public Involvement for palliative care research Research Involvement and Engagement. 10, 19
• WILSON, E. and TURNER, N., 2024. Expanding Qualitative Interviewing for Studies Involving Adults With Different Communication Needs: Reflections on Research With People Living With Motor Neurone Disease International Journal of Qualitative Methods. 23,
• MITCHELL, S., TURNER, N., FRYER, K., AUNGER, J., BENG, J., COUCHMAN, E., LEACH, I., BAYLEY, J., GARDINER, C., SLEEMAN, K. and EVANS, C., 2024. Integration of primary care and palliative care services to improve equality and equity at the end-of-life: Findings from realist stakeholder workshops Palliative Medicine.
• POLLOCK, K., CASWELL, G., TURNER, N. and WILSON, E., 2024. Beyond the Reach of Palliative Care’: A Qualitative Study of Patient and Public Experiences and Anticipation of Death and Dying Qualitative Health Research.

• View all publications

Past Research

April 2021 - University of Sheffield, Yorkshire Cancer Research Associate (part time)

Study: The role and response of primary healthcare services in community end-of-life care during COVID-19 (PI Dr Sarah Mitchell). Funded by RCGP to explore GP and Community Nurse perspectives and develop recommendations for primary palliative care in pandemics

Aug 2018 - March 2021: University of Nottingham, Research Fellow

Study: Exploring the social management of lone deaths (PI Dr Glenys Caswell). Funded by the Leverhulme Trust to explore social responses when someone who lives alone dies alone at home.

Study: Exploring Death and Dying in the UK (EDDUK) (PI Prof Kristian Pollock). Funded by Marie Curie to explore public, patient and family perspectives and experiences of death and dying in different care settings and conditions within the UK, and establish concerns and priorities for end of life care.

Feb 2018 - July 2018: University of Cambridge, Research Associate (part-time)

Study: Optimum 'hospice at home' services for end of life care (OPEL) (PI Prof Claire Butler, University of Canterbury). Funded by the NIHR Health Services and Delivery Research Programme to examine the features of Hospice at Home models that work, for whom, and under what circumstances.

Oct 2016 - July 2018: University of Nottingham Research Fellow (part-time)

Study: Proactive Healthcare of Older People in Care Homes (PEACH) (PI Dr Adam Gordon). Funded by the Dunhill Medical Trust to explore whether and how Comprehensive Geriatric Assessment (CGA) can be established as a model of working for older people living in care homes and whether it is associated with health benefits.

Study: Managing Medicines for patients with serious illness being cared for and dying at home (PI Prof Kristian Pollock). Funded by NIHR Health Services Research and Delivery Programme to explore how patients with serious, life limiting and terminal illness, their family care givers and health care professionals engage collaboratively in managing medicines prescribed for relief of symptoms towards the end of life.

Study: Broadening Our Understanding of Good Home Care (BOUGH) (PI Prof Justine Schneider).Funded by NIHR School for Social Care Research to understand the scope and nature of good quality home care for people with dementia so that it can be more widely implemented.

2012 - 2016: University of Nottingham PhD Studentship (full-time)

Thesis: Caring to the End: Exploring the family lives of young people with a parent at the end of life. An in-depth narrative interview study of the everyday lives of young people living with a parent at the end of life and their nominated family members. Research supervisors: Dr Kathryn Almack, Prof Saul Becker.

• MITCHELL, S., TURNER, N., FRYER, K., BENG, J., OGDEN, M., WATSON, M., GARDINER, C., BAYLEY, J., SLEEMAN, K. and EVANS, C., 2024. A framework for more equitable, diverse, and inclusive Patient and Public Involvement for palliative care research Research Involvement and Engagement. 10, 19
• WILSON, E. and TURNER, N., 2024. Expanding Qualitative Interviewing for Studies Involving Adults With Different Communication Needs: Reflections on Research With People Living With Motor Neurone Disease International Journal of Qualitative Methods. 23,
• MITCHELL, S., TURNER, N., FRYER, K., AUNGER, J., BENG, J., COUCHMAN, E., LEACH, I., BAYLEY, J., GARDINER, C., SLEEMAN, K. and EVANS, C., 2024. Integration of primary care and palliative care services to improve equality and equity at the end-of-life: Findings from realist stakeholder workshops Palliative Medicine.
• POLLOCK, K., CASWELL, G., TURNER, N. and WILSON, E., 2024. Beyond the Reach of Palliative Care’: A Qualitative Study of Patient and Public Experiences and Anticipation of Death and Dying Qualitative Health Research.
• TURNER, N., FAULL, C., PALMER, J., ARMSTRONG, A., BEDFORD, J., TURNER, M.R. and WILSON, E., 2024. Understanding Quality of Life for People with Motor Neurone Disease Who Use Tracheostomy Ventilation and Family Members: A Scoping Review Brain Sciences. 14(8), 821
• WILSON, E., TURNER, N., FAULL, C., PALMER, J., TURNER, M.R. and DAVIDSON, S., 2023. Understanding living with tracheostomy ventilation for motor neuron disease and the implications for quality of life: a qualitative study protocol BMJ Open. 13, e071624
• TURNER, N., WAHID, A., OLIVER, P., GARDINER, C., CHAPMAN, C., KAHN, D., BOYD, K., DALE, J., BARCLAY, S., MAYLAND, C. and MITCHELL, S., 2023. Role and response of primary healthcare services in community end-of-life care during COVID-19: Qualitative study and recommendations for primary palliative care delivery. Palliative Medicine. 37(2), 235-243
• POLLOCK, K., CASWELL, G., TURNER, N. and WILSON, E., 2023. The ideal and the real: Patient and bereaved family caregiver perspectives on the significance of place of death Death Studies.
• LEACH, I., MAYLAND, C. and TURNER, N., 2023. Understanding patient views and experiences of the IDENTIfication of PALLiative care needs (IDENTI-Pall): a qualitative interview study British Journal of General Practice.
• MITCHELL, S., LEACH, I., TURNER, N. and MAYLAND, C., 2022. Understanding patient views and experiences of the IDENTIfication of PALLiative care needs (IDENTI-Pall): A qualitative interview study protocol. BMJ Open.
• MAYLAND, CATRIONA R, SUNDERLAND, KATY A, COOPER, MATTHEW, TAYLOR, PAUL, POWELL, PHILIP A, ZEIGLER, LUCY, COX, VICKI, GILMAN, CONSTANCE, TURNER, NICOLA, FLEMMING, KATE and FRASER, LORNA K, 2022. Measuring quality of dying, death and end-of-life care for children and young people: A scoping review of available tools. Palliative medicine.
• WILSON, E., CASWELL, G. and TURNER, N., 2022. Talking about death and dying: Findings from deliberative discussion groups with members of the public Mortality.
• CASWELL, G., WILSON, E. and TURNER, N., 2022. 'It’s not like in the films’: bereaved people’s experiences of the deathbed vigil. OMEGA - Journal of Death and Dying.
• TURNER, N. and CASWELL, G., 2020. Moral ambiguity in media reports of dying alone Mortality. 25(3), 266-281
• POLLOCK, K., WILKINSON, S., PERRY-YOUNG, L., TURNER, N. and SCHNEIDER, J., 2020. What do family care-givers want from domiciliary care for relatives living with dementia? A qualitative study. Aging and Society.
• TURNER, N., 2020. ‘My life’s properly beginning’: Young people with a terminally-ill parent talk about the future. Sociology of Health and Illness.
• CASWELL, G. and TURNER, N., 2020. Ethical challenges in researching and telling the stories of recently deceased people Research Ethics.
• TURNER, N. and CASWELL, G., 2020. A Relative Absence: Exploring Professional Experiences of Funerals Without Mourners Omega - Journal of Death and Dying.
• TURNER, N. and ALMACK, K., 2019. Troubling meanings of family and competing moral imperatives in the family lives of young people with a parent who is at the end of life Children's Geographies. 17(5), 527-538
• SCHNEIDER, J., POLLOCK, K., WILKINSON, S., PERRY-YOUNG, L., TRAVERS, C. and TURNER, N., 2019. The subjective world of home care workers in dementia: an “order of worth” analysis Home Health Care Services Quarterly.
• WILSON, E, CASWELL, G, TURNER, N and POLLOCK, K, 2018. Managing medicines for patients dying at home: A review of family caregivers’ experiences Journal of Pain and Symptom Management. 56(6), 962-974
• TURNER, NICOLA, SCHNEIDER, JUSTINE, POLLOCK, KRISTIAN, TRAVERS, CHERYL, PERRY-YOUNG, LUCY and WILKINSON, SAMANTHA, 2018. ‘Going the extra mile’ for older people with dementia:: Exploring the voluntary labour of homecare workers Dementia.
• TURNER, NICOLA, 2017. Young people's perspectives on open communication between family members when a parent is dying. Palliative & supportive care. 1-7
• TURNER, N. and ALMACK, K., 2016. Recruiting young people to sensitive research: turning the 'wheels within wheels' International Journal of Social Research Methodology. 20(5), 485-497
• FRANCIS, V., RAJAN, P. and TURNER, N., 1990. British community norms for the Brief Symptom Inventory British Journal of Clinical Psychology. 29, 115-116