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Social Networks - Supporting Social networks for people with LTC

This group, led by Dr Neil Coulson, examines the role of online peer support for those affected by long-term conditions. In particular, this work examines the therapeutic potential of participation within online connected communities (e.g. asynchronous discussion forums, social networking) and seeks to identify and describe the factors underpinning engagement with online peer support, the ‘active ingredients’ within peer support communities as well as the psychosocial and clinical outcomes associated with engagement.

To date, this group has examined a range of long-term conditions (e.g. Inflammatory Bowel Disease, HIV/AIDS, dental phobia, infertility) as well as long-term problem behaviours (e.g. alcohol misuse) and works collaboratively with a range of patient focussed charities to develop online support provision.

Current studies include an analysis of support needs of patients with Complex Regional Pain Syndrome (CRPS) through innovative use of technology (NIHR funded) and the experiences of individuals who access Meniere’s disease online support communities (funded by the Meniere’s Society).

Members: Dr Neil Coulson, Dr Heather Buchanan, Richard Smedley (PhD student). Previous PhD students include Dr Sumaira Malik, Dr Phoenix Mo, Dr Oonagh Meade and Dr Kasia Campbell.

Methodological Expertise: This group employs a range of research methods including qualitative analysis (e.g. thematic, content, IPA) as well as quantitative online surveys, interviews and focus groups. The group has pioneered the development of online forum message analysis and has contributed to the development of ethics guidelines for internet-mediated research by the British Psychological Society.