Project Duration
April 2005 - December 2009
Funder
Marie Curie Cancer Care
Project Staff
Co grant holders
- Jane Seymour 2
- Christine Ingleton 3
Research staff
- Anita Sargeant 4
- John Chatwin 1
Staff Institutions
- Lancaster University
- The University of Nottingham
- University of Sheffield
- University of Bradford
Aims
The Marie Curie 'Delivering Choice Programme' is for people with life limiting illnesses.
The programme aims to help people to be cared for and die in the place of their choice.
This evaluation has examined the impact of interventions introduced by Marie Curie to improve services in Lincolnshire, Tayside and Leeds. We are particularly looking at:
- Implementation of 24 hour services to serve local needs and allow more people to be cared for and die in the place of their choice
- Access and barriers to palliative care services
- Co-ordination and communication between stakeholders
- Information provision to patients and carers, and relationship to informed choices about place of care
Methods
We have used a pragmatic realist evaluation design, employing mixed methods to collect data, including interviews, focus groups, surveys and documentary analysis to access the views and experiences of health care professionals, Directors and Managers of services; patients and their family carers; bereaved family carers, and to find out how services are organised and how they change once the Delivering Choice interventions are in place.
Outcomes and Findings
Fieldwork is now complete and the final reports of the Lincolnshire, Leeds and Tayside evaluations delivered to Marie Curie. A comparative report is being compiled.
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Contact the team
Publications
Chatwin J, Seymour J, Ingleton C and Payne S (2010). The role of health assistants in supporting district nurses and family carers to deliver palliative care at home: findings from an evaluation project. Journal of Clinical Nursing. Journal of Clinical Nursing, doi: 10.1111/j.1365-2702.2010.03563.x
Ingleton, C., Payne, S., Sargeant, A and Seymour J. (2009) Barriers to achieving care at home at the end of life: transferring patients between care settings using patient transport services. Palliative Medicine, available at: Palliat Med OnlineFirst, published on July 30, 2009 as doi: 10.1177/0269216309106893
Sargeant, A., Payne S, Ingleton C and Seymour JE (2008) Heart failure nurses’ experiences of specialist palliative care. End of Life Care, 1(3): 55-61.