Resources
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Resources
| Title/link | Description |
|---|---|
| The Down’s Heart Group | The Down’s Heart Group - a charity offering support and information relating to heart conditions associated with Down's Syndrome. |
| Atrioventricular Septal Defects | Information on Atrioventricular Septal Defects - An AVSD is the most common congenital heart defect found in children with Down's Syndrome. |
| Intensive care | Intensive care - All patients will be taken to the Intensive Care unit after heart surgery; for babies and children it will be a Paediatric unit whilst older patients will be on an adult unit – in a Children's Hospital it may well be a specific Cardiac Intensive Care Unit. Some will stay there only a few hours, others will be there longer. This link provides more information. |
| Feeding problems | Babies with Down's Syndrome have a tendency to early feeding problems possibly as a result of poor muscle tone, and babies with a heart problem also tend to have problems as they tire easily when feeding. So babies who have a heart defect and Down's Syndrome have two things making it harder for them and poor feeding and slow weight gain are common causes of anxiety for parents. |
Our Child - Print summary
This e-learning package is designed to empower parents who have a child with Down's syndrome and who are facing congenital heart surgery. It also takes parents and professionals on a journey through one family's story from diagnosis, surgery to living life to the full.
Learning outcomes
By completing this resource you will be able to:
- Understand some of the challenges facing parents who have a child with Down's syndrome.
- Discuss how parents who have a child with Down's syndrome face the possibility of their child undergoing congenital heart surgery.
Learning outcomes
By completing this resource you will be able to:
- Understand some of the challenges facing parents who have a child with Down's syndrome.
- Discuss how parents who have a child with Down's syndrome face the possibility of their child undergoing congenital heart surgery.
With thanks to:
The Lawson Family who have kindly given permission to share their story.
University of Nottingham - School of Health Sciences:
Content author - Helen Laverty - Professional Lead Learning Disability Nursing, Faculty of Medicine and Health Sciences
Project Mentor - Richard Windle - Senior Lecturer in e-learning, The Helm Team, Faculty of Medicine and Health Sciences
Developer - Michael Taylor - Learning Technologist / Media developer , The Helm Team, Faculty of Medicine and Health Sciences
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Learning Objects for Healthcare by School of Health Sciences, University of Nottingham is licensed under a Creative Commons Attribution-NonCommercial 3.0 Unported License.