Miss Vas said: “This is research which reviews the existing evidence we have on the impact of hearing loss on those diagnosed with the condition, as well as those around them. Currently there is no cure for hearing loss, so we need to consider ways to help with aspects of life affect by hearing loss, such as those highlighted in this research.”
An estimated 300 million people around the world are living with hearing loss, which can affect almost every aspect of daily life leading to isolation, difficulties socialising, low self-esteem and problems in the workplace.
However, hearing loss not only affects the individual but those with whom the person with hearing impairment communicates on a regular basis – their spouse, siblings, children, friends, relatives, colleagues and carers.
Often, information from these so-called ‘communications partners’ can be used to get a more accurate picture of the individual’s hearing loss and level of resulting disability.
Both perspectives
The Nottingham research, funded by the Medical Research Council, reviewed more than 70 previous studies that looked at the complaints made by people with hearing loss and those closest to them to examine the same issue from both perspectives.
The study uncovered common areas causing concern for both those experiencing hearing loss and those living closest to them.
Flashpoint areas included:
- The telephone – people with hearing problems reported difficulties with hearing the phone ring or the person speaking at the other end, while their communications partner reported having to take on the role of continually answering the phone or telling their partner when it is ringing
- The telephone – people with hearing problems reported difficulties with hearing the phone ring or the person speaking at the other end, while their communications partner reported having to take on the role of continually answering the phone or telling their partner when it is ringing
- The television and radio – raised volume as a result of hearing loss was reported as an area of conflict
- Social life – people with hearing loss spoke of the difficulties of social conversations in noisy environments, while partners reported reduced enjoyment of social events due to their partner’s hearing loss and attending social events alone. This also contributed to the issue of isolation as both parties reported becoming more socially withdrawn as a result of the hearing loss.
- Emotions – communications partners reported the burden and stress of having to adjust to their partner’s hearing loss as well as the emotional consequences for their relationship. They expressed feelings of guilt and upset in relation to the way they reacted to the hearing loss and their lack of understanding of their partner’s difficulties. They also reported finding the effort of communicating particularly draining.
Miss Vas added: “Hearing loss is a chronic condition that affects the whole family. Yet, to our knowledge, our work represents the first attempt to piece together a picture of the effect of hearing loss from the perspectives of people with hearing loss and their partners.
“Evidence from video-recorded audiology appointments shows that family members have a strong interest in being involved and sharing their experiences of the patient’s hearing loss. However, they are typically discounted by the audiologist.”
The researchers believe that listening to the views of partners and family during clinical consultations and involving them in future treatment strategies could help to ease the patient’s journey through rehabilitation.
This research was funded as part of the National Institute for Health Research (NIHR) support to research into hearing loss in Nottingham. Hearing is one of six areas of clinical research that form part of the new NIHR Nottingham Biomedical Research Centre, a partnership between Nottingham University Hospitals NHS Trust and the University of Nottingham. The aim of the Nottingham BRC is to translate high quality research into treatments, technology and therapies over the next five years.
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Notes to editors:
The University of Nottingham is a research-intensive university with a proud heritage, consistently ranked among the world's top 100. Studying at the University of Nottingham is a life-changing experience and we pride ourselves on unlocking the potential of our 44,000 students - Nottingham was named University of the Year for Graduate Employment in the 2017 Times and Sunday Times Good University Guide, was awarded gold in the TEF 2017 and features in the top 20 of all three major UK rankings. We have a pioneering spirit, expressed in the vision of our founder Sir Jesse Boot, which has seen us lead the way in establishing campuses in China and Malaysia - part of a globally connected network of education, research and industrial engagement. We are ranked eighth for research power in the UK according to REF 2014. We have six beacons of research excellence helping to transform lives and change the world; we are also a major employer and industry partner - locally and globally.
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NIHR Nottingham Biomedical Research Centre The NIHR Nottingham Biomedical Research Centre (BRC) was established in April 2017 to improve the health of millions of people by translating world-leading research into breakthrough treatments, innovative technologies and new medicines. It is carrying out research into six areas of health: • hearing; • gastrointestinal and liver diseases • musculoskeletal (muscle and joint-related) disease • mental health and technology • respiratory (lung) disease • Magnetic Resonance Imaging (MRI) which supports all areas of research
The Nottingham BRC is a partnership between Nottingham University Hospitals NHS Trust and the University of Nottingham, supported by Nottinghamshire Healthcare NHS Foundation Trust. It is funded by the National Institute of Health Research (NIHR) – the research arm of the NHS. It is one of only 20 centres around the country set up to translate research into life-saving treatments for the future.
The National Institute for Health Research (NIHR): improving the health and wealth of the nation through research. Established by the Department of Health, the NIHR: • funds high quality research to improve health • trains and supports health researchers • provides world-class research facilities • works with the life sciences industry and charities to benefit all • involves patients and the public at every step
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