RECORDER are delighted to be part of the new Rare Disease network at the University of Nottingham. The Rare Disease Network recognises the importance of research in rare diseases, which affect the lives of 1 in 17 people. 

The University of Nottingham has significant interests in rare disease research, with over 52 academics crossing multiple schools and faculties joining the research network, ranging from fundamental research to clinical trials and health data science. Additionally, Nottingham University Hospitals hosts multiple rare disease clinics, including two national disease-specific rare disease services. Most rare diseases are genetic in origin and present similar challenges.

The Rare Disease Network's vision is to establish an interdisciplinary framework at UoN, bringing together a consortium of researchers with demonstrated scientific excellence and originality in addressing the challenges posed by rare diseases, and conduct research leading to improved treatments and patient outcomes.

Dr Rebecca Trueman, Associate Professor of Neuroscience, School of Life Sciences, who leads the network, says “Nottingham has a rich variety of Rare Disease research, spanning from fundamental science to clinical research. By linking together we can drive forward advances to improve patients’ lives.”